8 Things I Want You to Understand About Living with Rheumatoid Arthritis

This post was previously published on The Mighty. I have made updates to that original post.

I've been living with a diagnosis of rheumatoid arthritis (RA) for almost 4 years but looking back, I probably had RA for much longer than that. As an avid athlete, the physical changes associated with RA have been very difficult for me to deal with. I continue to attempt to keep up with my activities. I've learned to appreciate the good days and do what I can on the bad days. Sometimes, a day on the couch is the only activity I'm able to do.

What's been even more difficult for me is the lack of understanding and support from some of the people around me. Maybe if they knew more about RA and maybe if I had the opportunity to share some of the things I wish they knew about RA, they'd get it.

Here are 8 things I want people to understand about living with rheumatoid arthritis.

Ice Age Trail 50k Training Week 2

After processing the events of the past couple of weeks, I was feeling pretty tired this week and it all played out in my workouts. My runs were sluggish and my strength sessions felt hard. My sleep improved over the course of the week. I got myself back on track with my nutrition. I stuck to the plan that Marcia laid out for me and got it all done.

Digging deep was the lesson of the week. Maybe I can do this thing?

Wednesday's hot and steamy run.

Coconut Mango Lassi Smoothie--A Tasty Anti-Inflammatory Tropical Treat

Yum! Mangoes are the perfect foil for the summer heat. Eaten out of hand or blended with fruit to make a delicious smoothie, the versatile mango adds a tropical touch to everything!

Mangoes are not only delicious, they are nutritious. High in fiber, mangoes also contain 100% of your daily Vitamin C as well as 20 other vitamins in minerals. An anti-inflammatory powerhouse, mangoes help fight diseases that cause inflammation in the body. 

How to Train for a Long Distance Race Through the Heat of Summer

Disclaimers: This is a previously published post that I've updated. This post contains affiliate links.

I know I'm not alone in welcoming the longer days and warmer temperatures of summer. It feels great to peel off the layers and not freeze when I step out the door. Except that for most of us, running in the heat is tough. Having trained for a few fall marathons through some really hot summers, I know that it can be a challenge to get those miles in when it's hot and humid.

Over the years, I've gotten a little smarter about training for long distances in the heat. I thought I'd share some of the tips and tricks that have worked for me.

Ice Age Trail 50k Training Week 1

This post contains an affiliate link.

With all the race cancellations happening, I optimistically embarked this week on my training plan for the Ice Age Trail 50k, rescheduled for September 26. Will it actually take place? Only about 250 runners did the 50k last year, so as a smaller race, hopefully it won't be canceled. The race takes place completely on the trails of the Southern Kettle Moraine Forest in Wisconsin. Reading about other trail races and how they are adapting to the challenges of the pandemic makes me think that with some changes--think staggered start times and hands-free aid stations--this could actually work.

We'll see. For now, I'm sticking to the plan that Marcia has made for me. I've got this.

We Need to Talk

We need to talk. Let's pour the coffee and sit down. I've got Dunkin Donuts, which is currently my favorite blend. A little splash of half and half and I'm good. How about you?

A lot has happened since our last coffee date, both personally and in the world around us. I thought April was the longest month ever, but May got competitive. And June looks to be ramping up as well.

RA Healthline: A New Resource for People with Rheumatoid Arthritis

Disclaimer: This is a sponsored post. I was compensated by Healthline for sharing information and my honest opinion about the RA Healthline app. 

It seems like there's an app for everything these days, doesn't it? As a nurse practitioner, I often recommend apps to my patients for symptom tracking, periods, and diet. Since almost everyone has a smart phone, using apps to track health keeps all your information right in the palm of your hand. I personally use the app from my healthcare provider to view all my information, pay my bills, schedule appointments, and send messages to my provider. It's really great!

What if there was an app to provide information about your chronic condition, connect you with other people who have the same diagnosis, have live chats where you can text with experts and have your questions answered, and provide support?

I'm really excited to partner with Healthline as they introduce an app for rheumatoid arthritis! Healthline is a medical information website that provides science-based medical information in easy to understand language and a format that is user-friendly.