As an athlete, I've always been someone who likes to be in charge of my body. I'm also a nurse practitioner who works in a primary healthcare setting, managing patient care. When I was diagnosed with rheumatoid arthritis a few years ago, I looked for a specialist who would provide the medical care I needed but would also partner with me in medical decision making. In the early days of my diagnosis, I was more passive as a patient, letting my doctor order medications and treatments she deemed necessary. As time passed, I did the necessary homework, reading up on my disease and treatments and asking questions.
I took a more active role in my treatment plan when a serious side effect occurred with one of the medications I was taking. My doctor wanted to continue the medication but at a lower dose. We debated the pros and cons and in the end, she discontinued the medication. With my most recent disease flare, during which I had severe fatigue, we discussed options of how to best manage my symptoms. I agreed to a trial of a new medication. After 6 weeks of the medication, there was no improvement and I developed tinnitus, a non-reversible side effect. During those 6 weeks, I combed through the medical literature on my condition and symptoms. When I returned to see my doctor, armed with knowledge, I was prepared to discuss my perspective, as an athlete and as a patient. While she stopped the tinnitus-causing medication, alternative medications she wanted me to start would have further impacted my ability to exercise. There was an alternative medication I had learned about and when I presented it to her, she liked it.
Several months later, I can say that I am feeling and doing much better.
I see a lot of posts on social media from fellow athletes who have health problems, ranging from injuries to chronic illnesses like mine. As a health care provider myself, I can say with all honesty that not all medical providers are willing to partner with their patients to develop a plan of care that is customized to their needs. There are also patients who are willing to take a passive role in their health care and follow whatever their physician tells them. I am also amazed at people who refuse to follow conventional, proven treatments for health conditions. While there is a place for alternative medicine, it is as an adjunct to conventional medicine, not as a replacement. There has to be a happy medium here!
How do we partner with our doctors (and nurse practitioners) and still take charge of our health?
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