Showing posts with label second opinion. Show all posts
Showing posts with label second opinion. Show all posts

Tuesday, October 29, 2019

A Second Opinion: How Do I Know Which Way to Go?

Disclaimer: This post is not intended to give medical advice, but to share my personal experience. You should always consult your medical provider for any concerns regarding your health. In addition, I am pro-vaccine and am not advocating for anyone to avoid a vaccine based on my experience.

Last February, I developed a rheumatoid arthritis (RA) flare that never seemed to end. Initially, I wasn't sure what was going on but my endurance was suddenly gone. Poof! It was as if I never had run a step in my life. My heart would beat into the red zone if I moved any faster than a walk. I was experiencing an uptick in joint pain and such severe fatigue that I could barely climb a flight of stairs without having to stop to catch my breath. Running became such a challenge that even the run/walk intervals I had used successfully in the past weren't helping me.

Was it the weather? Or something else? As the symptoms continued, I thought about everything that could have caused this flare. Then the light bulb went off. I had received a shingles vaccine week earlier-- could that have triggered an immune response that fueled my disease? Upon the advice of my rheumatologist, I held my dose of Humira the week before and after receiving the vaccine so that my immune system would properly respond to the vaccine. The day after I received the vaccine, I developed a fever and body aches. I figured it was just a typical vaccine reaction. I initially felt better but after a week or so found myself in a full-blown disease flare.

Unfortunately, this flare lasted for months. A course of steroids would tamp down my symptoms, but as soon as I stopped them, the flare would fire up again.

A long time runner, I have always used my runs to measure my health. I might wake up in the morning and feel bad, but if I have a run scheduled and it goes well, I know that I'm well enough to go to work and proceed with my day. I think most runners are in tune with their bodies and can read their symptoms pretty well. As a nurse practitioner, I joke that I have enough medical knowledge to be dangerous. The bottom line is that I have the ability to figure out what is happening with me.
If you have been reading my blog for some time, you know that I struggled with running and other endurance workouts for most of this year. I dropped down to the 5k in many of my planned races as well as DNSing races that didn't have a shorter distance as an option. It was disheartening as well as discouraging. In August, I wrote a post titled "Can I Even Call Myself a Runner". I was really depressed and frustrated. I thought I might not be able to run anymore.

My rheumatologist downplayed my symptoms. Among the other things she told me, she said that since my inflammatory markers were normal, my symptoms weren't due to an RA flare. Frustrated with her response to my concerns, I decided to seek a second opinion. Even though there was a 6 month wait for a new patient appointment with the rheumatologist I wanted to see, I was willing to wait. I knew that the flare would take time to resolve and that there was nothing magical to make it go away. I just wanted to find a provider who would listen to me.